I have a wonderful news to share about Shriya.
Due to continued efforts by Shriya's parents, the Genzyme Corporation (the company which manufactures the drug given to Shriya) has given their consent to sponsor Shriya's ERT, at least for the time being. This is part of the corporate social responsibility (CSR) program of the company. This gives an immediate relief to Shriya's parents. While this is not a permanent solution for Shriya's family, this gives them enough time to work with other agencies for a long term solution for Shriya.
Shriya's parents have requested to STOP the donations which was generously offered. This was communicated to me in late November last year. But I wanted to wait to see that the situation did not change. So my apologies in case this comes to you a little late.
Please do not stop praying for Shriya and her family. Their life still revolves going to the hospital twice a month and manage their routine lives. It is still not easy for the family and your best wishes will be needed always.
I thank everyone who read my posts on Shriya and generously came forward with help and prayers. A big THANK YOU!